List of Registries | National Institutes of Health (NIH)

A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. Many registries collect information about people who have a specific disease or condition, while others seek participants of varying health status who may be willing to participate in research about a particular disease.

https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries